May 18, 2017
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May 18th 2 weeks remain....
Hello DestinyMaker's,
PARTNERS
#EPILEPSYFOUNDATION
#ATHLETESVSEPILEPSY
SPONSORS
#DENNYSDINER
#SOUTHATHLECTICS
May 17th run 12.5 miles
Current weight 158
Weather for Aventura, FloridaToday
85° 78°Fri
86° 79°Sat86° 79°Sun
85° 77°“These are my expressions placed on a wrinkled sleeve. I have tried to iron out the freckled nuisances of trepidation. Walking on egg shells, sinking in quick sand, drowning in the abyss. I am a reflection of the mistakes I’ve made and the regrets I have. Maybe in a way personal failure allows for tolerance of another, acceptance of the polar opposite. It’s why to the not bitter but better end I will go. I know I am different but all I want to do is make a difference”.
Some run for a reason, someone near and dear. Others run for a cause a condition afflicted to a love one. I am running for a purpose. Few have said I have been running my whole life. Well, truth be told today I am finally running for something, I am running for you. Epilepsy arrives unannounced. It does not knock at the door politely. It knocks the door down literally shaking both it’s foundation and family. Long before my advocacy there was helplessness. Long before I met many of you I was alone. Since I am unable to lessen anyone’s situation, nor bring back who has been lost to SUDEP what I can do is go the extra mile.
Here is the upcoming schedule of events planned….. Running Across America June 1st
Previous events…..
2017 Training began March 1st
2016 This fall training begins, fell broke ribs
2015 More surgery, recovery Rested!
2014 Injured, recovery, surgery!
2013 Miami to Tallahassee 532 mile bike ride
2013 62 mile Run
2013 48 Marathons in 48 days
2012 Key Largo to Key West 100 mile run
2012 (5) 37 mile runs, (4) 50 mile runs (1) 60 mile run
2011 Miami to Venice Beach 8500 miles (the long way) bike
2010 Miami to Anchorage 6700 miles bike
2009 New Years 24 hours 301 miles bike
2009 Valentine 50 mile run
2009 Miami to Canada and back. 6500 miles bike
2008 Denver to Miami 8100 miles bike (the long way)
2007 Anchorage to Miami 6200 miles bike
2006 Seattle to Miami 4038 miles bikeWhen you are willing to die
for something others are dying from,When you give up your home, work,
wage, comfort for their suffering,When you place the lives of others before your own
knowing full well the consequences of my actionsWhen the ridicule outweighs the promise of possibility
or even the success of your crusadeYou will then begin to understand just why
I am willing to run across America.If nothing else I am as determined as I am stubborn to give up!
The mind of a poet
The heart of lion
A soul from the sea
Eyes from the sky....It's time to stop dreaming and begin pursuing!
Want to be void of any criticism then....
Do nothing, Be nothing!
In dining room coffee, reading articles of interest and messages received from around the globe. It's always interesting nearing the beginning who responds and where the silence comes from. I can only control the effort of my dedication and my will to succeed. 2 weeks to go.
Today I will be do my range of motion stretches and strengthening at 7, 9. These include body mechanic work, movement with and without weights. Shadow boxing movement. Leg and stomach work. All done clean without the use of any PEDS. Ever!!!!
2 weeks from this moment I will be over at Turnberry Resort Hotel about to begin my run across America. It's really unbelievable. I look back to when all this began and I can assure you this I run without regret as this cause for me has grown larger then life. I feel good after yesterday's 12.5 mile run. It took me a little bit to get going. I was running 16 min miles but when I was done it was under 15. That's where I want to be. I want to avg 4.5 mph. Run 8 hrs. After the first couple days as I get my sea legs well road legs. As I start earlier each day.After starting 6am it's my hope to get closer to hint of first light. Then even beginning in the dark. A 4am start and run to noon. That would be so awesome. Once that happens there will be late afternoon runs as well.Work is basically over. I do have some hours remaining. Got to eat and pay bills. For those who have been following this blog for years you know the deal. I am always fighting the fight to keep it all together. I used to say want to keep the electric on I have always struggled. Need someone to run across America I am your guy. Now I have the chance to for this challenge.
This is the new logo for the run.Shirts being printed!!!
Other shirts being done.Volunteering for Jewish War Veterans and received a $100 donation to the #epilepsyfoundation for my run Across America.
This is so awesome!!!!!!! Please check it out
A person or thing that makes things or events happen to a particular person or thing in the future. The hidden power believed to control what will happen in the future.athletesvsepilepsy.com
Start and Finishmiles12.50hours2:59:25mins/mi14:23Elevation gain (ft)42Training miles. I will post this everyday on the run
$ raised for #epilepsyfoundation $2,520 on line. $100 in checks
EPILEPSY INFORMATION
REN News
Members of the Rare Epilepsy Network (REN) are building a patient registry to collect information about people living with rare epilepsies to better understand these conditions, improve treatments, and improve the lives and quality of care of people living with them. Learn about some of their recent and upcoming activities in the latest REN newsletter.
Download the newsletter »
Learn more and register for REN »Epilepsy Self-Management Survey
Are you Black or African American? Are you 18 years old or older? Are you diagnosed with epilepsy? The Managing Epilepsy Well Network's survey to understand how adults with epilepsy manage their condition is still open.
Learn more and get involved »Reminder
Ezogabine Being Discontinued
The medication ezogabine (Potiga), known as retigabine (Trobalt) in other countries, will not be commercially available after June 30, 2017.
Find out what to do »The Epilepsies: Imagining Our Future
Sonya Dumanis PhD, director of the Epilepsy Innovation Institute, discusses the current and future use of genetics in epilepsy prognosis and treatment.
Learn more »
