Hello Destinymaker's,

Today, well this afternoon begins 5 days with Nyle. I am happiest during my days with him. We have such a great bond. One that I never had when his age. I am looking forward to our time today and the rest of the weekend.

The day began as always. I was up well before dawn. I checked messages. one from the dating service. I will get back to that in a moment. I checked email, read articles on epilepsy and sports. I was then off to the asphalt.
Still not going all out. Not going to force the issue. I did go 20 miles nice and easy. I also walked, ran, lifted and stretched. I feel and my weight is currently at 165.

The days fly by and I haven't really arranged anything for new year's. No not a party but a 24 hour bike ride for awareness. I must get on that soon or I will just be biking for the heck of it and I could spend new year's some doing something.

Also I can't keep neglecting my bike ride next year. How have I in past trip done it. I get exhausted just thinking about the effort it will take just to set up the ride. Then I have to actually bike another 6000 miles. Until you do it once you realized don't keep doing it!

When I receive thank you from Moms all over I feel the work I do is getting results. Many of these people just want hope. There might be little out there but that doesn't mean I can't find some from all who follow me.

Nyle came over in the afternoon and worked and played tennis. His game is really good right now. He is moving better then ever before. If he could just get in better shape he would be amazing. I look forward also to seeing t meds reduce. I think it would allow him to react somewhat faster.

We had dinner afterward. Watched TV and called it a night.

I am truly blessed for the son I have!!!!

Hi destinymaker,

As you are probably aware, CWE is a privately owned and operated website dedicated to the worldwide epilepsy community.  Without a dedicated, paid staff, CWE relies heavily on the support of volunteers to help moderate and manage the discussion forums. 

Until recently, all administrator chores were reserved for handling by basically one individual - Bernard (ie. me).   While I do dedicate a tremendous amount of my time to keeping CWE humming along, I also have a day job to pay the bills.  Recently, my job required me to travel overseas to assist a client on a project.

Since early October, I was working overseas with limited access to the internet.  To the extent that the majority of you never noticed my absence (or reduced presence), it's a credit to the moderating team.

During the course of my assignment overseas, it became evident that I needed to promote a few moderators to handle some of the administrator chores.

As you might have guessed by now, the email that was sent out recently to all CWE members regarding a user name change was in fact intended for just a single recipient.  It was a an honest mistake - part of the learning curve in navigating the administrator control panel by one of the newly appointed volunteer administrators.  I apologize for any confusion this may have caused to the membership.

I am happy to report that the new, dedicated, managed server that CWE is using is providing a very solid platform for the site - experiencing no significant down time or sluggish performance.

I am doubly (or more) pleased to report that CWE appears to be financially secure for the near future - having enough reserve funding to pay the bills for at least a year in advance.  CWE can afford to continue operating on the existing server for a good long time.

Did you know that CWE has surpassed 3,500 members?  Members have posted over 73,000 comments in more than 6,000 discussion topics.  It's quite humbling to me to see CWE's explosive growth over the last couple of years.  I thank you all for being a part of it.  See you on the forums.

Cordially,
Bernard
www.coping-with-epilepsy.com

Edith Rose Katolick-Chambers commented on your status:

"AMEN GLENN;MY FATHER WAS IN WORLD WAR 2 AND WHAT STORIES THAT WERE NEVER TOLD BECAUSE HE WAS FROM THE SILENT GENERATION."

Hello DestinyMaker's,

With the baseball season now over and the Phillies losing to NY I've begun to settle in to the other sports going on. The Eagles are doing well and are in position as usual to make the playoffs. The NBA and NHL season have begun and I love that. I watch most Miami Heat games and do check the internet for scores on 76ers, Flyers. A true sports fan I am. With no girl friend in site looks like another season of watching as much sports as possible.

The wind is beginning to die down. The storm now well to the north is not a factor here any more. I was out early for some outdoor cycling. Strange but I am still fighting my self on the road. Short of feeling fear I've yet to reach the level of intensity I think needed. I am not feeling this in the gym or other aspects of my training. Since my accident I haven't been the same. I rode 5 miles and went to Starbucks for coffee and conversation. There was plenty of coffee. Not to much in conversation. I biked back home and walk 1.5 miles, ran 5 miles in a hour. I lifted weights.

Over to Power Smoothie for lunch. Where else do I go. I am training the Owner and we are bartering payment. He has lost 45 pounds since training with me. I have gained none since eating there every day. Sometimes I am there 3 or 4 times a day. I do eat else where by the way.

Cytosport wrote back and will be sending a new supply of their product. It should be enough to get me to April. What is April you might be thinking. I am biking to Alaska. If you live on the route which is posted @ www.destinymaker.org you possibly could help me. I will need to preposition supplies.

I was on the tennis court today playing and working. My game both teaching and in competition are at a high level. One thing I am beginning to realize is that the young ones I am working with when they turn teenagers I will be 60. OUCH!

Night time brings the same. Work on destinymaker. Watch sports. Go to sleep. My body needs the rest.

Subject: Interesting Study....

American Academy of Neurology.

"Many patients report they can identify periods of increased risk for seizure, but this has not been prospectively tested before," according to lead study author Sheryl Haut, MD, of the Montefiore Medical Center in Bronx, New York, and a member of the American Academy of Neurology.

To determine how accurate patient predictions were, researchers examined 71 patients who had at least one seizure during the past year, but not more than one per day. Patients were asked to keep a daily log in which they predicted how likely they were to experience a seizure in the coming 24 hours.

Fifty-seven patients experienced seizures during the study. Of these patients, the study found they correctly predicted about 32 percent of their seizures, and 83 percent of their seizure-free days. Seizures were twice as likely to happen in the 24 hours following a positive prediction.

Some people were much better able to predict seizures than others. "The study found a subgroup of 12 patients in which seizures were more than three times as likely following a prediction," said Haut. "While these patients were younger and had a higher seizure rate, no other factor stood out as a likely reason for their higher accuracy."

If these results are confirmed in future studies, the ability to predict seizures could have significant implications for treatment of epilepsy. "Patients who can accurately predict an increased risk of seizure might be able to take medications to pre-empt a seizure before it starts," said Haut. "Accurate prediction of a reduced risk is also important since it might provide reassurance and improve quality of life for people with epilepsy."

In addition, researchers say identifying periods of time when the probability of seizures is increased also offers patients an opportunity to institute precautionary measures.

"The study has several limitations, such as patients reporting their own predictions and seizures, but overall it is an important step towards a new direction for obtaining better seizure control and improving the lives of people with epilepsy," said Haut.

The study was supported by a grant from the National Institutes of Health.

Hello DestinyMaker's,

Ok I am over Hurricane Ida. Well maybe more then other way around as Hurricane system though to our west is reaching South Florida with gale force winds. We are currently having winds 25-30 mph with gusts over 40. I lost out on 4 hours of tennis because of it at a time when money can't be lost. Such is the struggle for someone who has put his life on the line and poured every penny into our cause. That's right my life's savings have gone into destinymaker. If I am unable to work, I am unable to eat. Thats why the barter between Matt and I has worked out so well for me. I am training Matt in fitness. Matt owns Power Smoothie. We trade my training him for food. Thank goodness for this deal because there have been days with no money nor food and I've gone there and ate like a king. Also the deal covers Nyle. Matt by the way started with me @ 287 pounds and now less then 3 months later is down to 245 pounds. We are both proud of the work and effort put in. Folks you just have to burn calories and the weight will come off. Matt is living truth to that.

Sunday morning coffee. Can it get any better. Yes it could. Watching someone share a cup with me. That would be best. To wake up on a Sunday with nothing to do but read the paper and enjoy another persons company. I miss Sunday mornings for all it's possibilities. This Sunday no different. I was up early. I felt a slight pull near my groin. (don't get fresh) The right side is really tight. I need to be careful as I do not want to tear anything near there. My morning hours were canceled again due to the wind.

I biked over and got Nyle his favorite Sunday food. Nova, Whitefish, Bagels. Normally we have that for lunch on Sundays but we will for dinner tonight. I also stopped at Publix to pay for Nyle's meds. After my errands it was time to head home and watch some football. Wasn't to much to enjoy as both the Dolphins and the Eagles lost.

Nyle came over around 6. We played tennis though the wind really made it tough. After tennis we ate dinner together. We had a good talk about things current in his life. Try to catch something early by communicating now.

Angela Taylor commented on your status:

"The Altimate Sacrifice but worth making to do what's right in my opinion."

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